| We are a non-profit organization that
is committed to the advancement in research of rare immunodeficient
disorders/diseases. We will help support research for
the cures for these diseases as well as finding new ways
to identify these disorders. |
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X-linked lymphoproliferative syndrome
(XLP), which is also known as Duncan’s syndrome,
is a rare always fatal disease that affects only boys.
To date only about 100 families and 400+ boys have been
diagnosed worldwide.
Kingston Kia Kaha Aiono was born on march 21st,
2004 to Sarah Premo and Hagoth Aiono. He was a peaceful
and happy baby that had the biggest eyes and smile to
match. Kingston was diagnosed with XLP on Wednesday
January 3, 2007…he passed two days later on Friday
January 5, 2007.
The objective of
this benefit concert is to help raise awareness of XLP
and charitable funds for the research and advancements
in the quest for a cure. |
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| Sponsored by |
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I cannot begin to stress
the importance of this cause. XLP is a little
known disease that we must educate ourselves on
and do everything in our power to overcome.My
participation in this benefit comes through the
tragic loss of my little friend Kingston. James
Perse
Learn more >> |
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| portion of Proceeds benefit Cincinnati
Children's Hospital Medical Center |
Cincinnati Children's Hospital Medical
Center is dedicated to providing the highest level of
pediatric care.
As an institution nationally recognized for excellence
in diagnosing and treating complex pediatric diseases,
Cincinnati Children's is proud to serve patients from
across the country and around the world. |
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Dr. Alexandra H. Filipovich continues
to play an integral role in identifying and researching
XLP as well as various other immunodeficiency’s’.
http://www.cincinnatichildrens.org/svc/
find-professional/f/lisa-filipovich.htm |
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| www.cincinnatichildrens.org |
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