I cannot begin to stress the importance of this cause. XLP is a little known disease that we must educate ourselves on and do everything in our power to overcome.

My participation in this benefit comes through the tragic loss of my little friend Kingston.
His passing came far too soon and far too fast for any of us to comprehend.

But what we are now left with are joyous memories of a perfect little boy, our limited knowledge of the disease that took him from us and the task of finding a cure.

It is in this way that I ask for all of your support so that other young boys may overcome XLP.

James Perse