KINGSTON KIA KAHA AIONO

Kingston Kia Kaha Aiono was born on march 21st, 2004 to Sarah Premo and Hagoth Aiono. He was a peaceful and happy baby that had the biggest eyes and smile to match. As he grew into a toddler his parents took him on frequent trips to the aquarium, beaches, parks, and anywhere else where he could absorb life's experiences. Kingston had a huge imagination for his age. If he wasn't pretending to use his index finger as a gun to shoot you, he was playing imaginary catch. He was also a huge Spongebob Squarepants fanatic. Kingston’s life was filled with music, art, family, and most of all… love. To Sarah and Hagoth, he was truly their King.
 
In mid December 2006, Kingston came down with a persistent fever. After several trips to the ER the doctors were adamant that Kingston had a virus and advised that the fever would eventually subside. Kingston was sent home with his family. But the fever was unyielding.

On December 27, 2006 Kingston was admitted to the Miller Children’s Hospital in Long Beach, CA. As the doctors had suspected, Kingston had been stricken with the Epstein-Barr virus (EBV), a common human virus. What the Dr’s did not realize was that Kingston had a rare immunodeficiency disorder known as X-linked lymphoproliferative syndrome (XLP). Kingston was diagnosed with XLP on Wednesday January 3, 2007…he passed two days later on Friday January 5, 2007.

Kingston was not tested for XLP, in fact, unless there is a family history of any immunodeficiency disorder most children won’t be tested for XLP. Since 1998 less than 500 cases have been diagnosed globally. Kingston’s death was swift and tragic…leaving us all with beautiful memories of his life and love…and several unanswered questions.
 
Baby Phoenix Aiono born Spet.14,2007 is the younger brother of Kingston Aiono. He needs help because he has been diagnosed with the same a rare disease, XLP.

Please visit www.amiracleforbabyphoenix.com to see how you can help